Just got back from my first walk around the block in quite awhile. It was 100% better than the previous one a few weeks ago.
In the previous one, I had to go very slowly and stop every 20 or 30 yards or so to catch my breath and allow the oxygen levels to normalize. This time, I only stopped once for a minute or two and did not desaturate below 85. Normal is 95+. I used to desat to the low 70s and that was on oxygen!
It appears that something is improving. We're just not quite sure what it is and whether it is stable.
As far as the heart surgery goes, we are going to seek out a second and third opinion. This may take a while but I think it would be definitely worth it.
The latest opinions have been basically that, with my many comorbidities I probably would not survive the surgery.
One of the things that I really need to find out is what happens if we just do nothing. In other words, what are the odds of something happening if we don't take the tumor out.
There's so much complexity involved in this situation that Karen and my head is literally spinning. And there's no agreement among the experts.
We have, at the very least, another tool two two and a half months get this stuff done and get a handle on what we're really going to do. I have just resumed my warfarin regimen and that's probably going to require two weeks added on to the time Dr H, the cardiovascular surgeon wanted to wait to see if this thing would disappear if we upped the warfarin dose.
The main problem of experimenting with that is the possibility of developing another bladder bleed.
That wasn't particularly serious before because I wasn't on any kind of anticoagulant. If it happens again it could theoretically be life threatening.
Rest assured, that I fully intend to battle these medical issues with every resource I have available. I honestly think that sixty-three years old is a little young to die.
Translation of above: I intend to prevail.
* Takes nice long sip of bourbon*
In the meantime, we've really got to get a handle on this stupid cancer and losing my brand new urologist certainly hasn't helped.
I have sent him an email asking him if I should be pursuing another urologist or a medical oncologist at this point.
I have a prospective urologist that is with my medical group and we're looking at him seriously if Dr F recommends him.
I have absolutely no idea what my PSA values are right now but I'm sure they are not good. Last check was 0.8 and rising. We've really got to start taking this someone seriously and get me on some kind of regimen, probably hormones, before this thing decides to spread if it hasn't already.
If I do die, I wish I had the ability to have my body plasticized. That is SO cool. You wind up on display virtually forever and you don't even smell. Lol!
By the way, I've said this before but let it be known that comments are always welcome on this blog.
They really help to relieve the depression and loneliness that goes along with this.
I really want people to know that I don't write this just trying to get 15 minutes of fame. That's definitely not going to happen! I'm just trying to share with people what it's really like to have a whole shitload of problems, and half of them probably won't ever be resolved in my lifetime.
* Takes nice long sip of bourbon*
I guess being tied 24/7 tubes and tanks and other medical equipment is just starting to take its toll a little bit.
I'm going to be looking into a different oxygen set up, it's a small pack that you were basically on your back. Right now, I have to be hooked up to these tanks that are relatively heavy and about 3 feet tall.
Good thing about them is if they're full, they give me about two and a half hours to go about my business.
* Takes ANOTHER nice long sip of bourbon*
Man, I really wish I had some good weed right now. I'm sure that would just be the perfect thing for my lungs, but it woulf help with getting my head in a different place.
Tomorrow, I have my high resolution cardiac MRI. I have no idea what they're going to discover on that but as usual you'll be the first to know.